{"id":196749,"date":"2024-08-05T11:06:40","date_gmt":"2024-08-05T10:06:40","guid":{"rendered":"https:\/\/ftww.org.uk\/?page_id=196749"},"modified":"2026-04-14T11:51:44","modified_gmt":"2026-04-14T10:51:44","slug":"awtoimiwnaidd","status":"publish","type":"page","link":"https:\/\/ftww.org.uk\/cy\/health-issues\/autoimmune\/","title":{"rendered":"Clefydau Awtoimiwnaidd"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Header&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#a7a2e5&#8243; background_image=&#8221;https:\/\/ftww.org.uk\/wp-content\/uploads\/2024\/11\/LC_1000px_autoimmune.png&#8221; background_size=&#8221;contain&#8221; background_position=&#8221;bottom_right&#8221; background_blend=&#8221;multiply&#8221; custom_padding=&#8221;40px||24px||false|false&#8221; background_last_edited=&#8221;on|phone&#8221; background_image_phone=&#8221;https:\/\/ftww.org.uk\/wp-content\/uploads\/2024\/11\/LC_1000px_autoimmune.png&#8221; background_enable_image_phone=&#8221;on&#8221; background_size_tablet=&#8221;custom&#8221; background_image_width_tablet=&#8221;75%&#8221; background_image_width_phone=&#8221;100%&#8221; background_position_tablet=&#8221;bottom_center&#8221; background_position_phone=&#8221;bottom_center&#8221; da_disable_devices=&#8221;off|off|off&#8221; border_radii=&#8221;on|0px|0px|0px|0px&#8221; box_shadow_style=&#8221;preset3&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row column_structure=&#8221;3_5,2_5&#8243; custom_padding_last_edited=&#8221;on|desktop&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; height_tablet=&#8221;&#8221; height_phone=&#8221;&#8221; height_last_edited=&#8221;on|phone&#8221; custom_margin=&#8221;0px|auto|0px|auto|false|false&#8221; custom_margin_tablet=&#8221;20px|auto|0px|auto|false|false&#8221; custom_margin_phone=&#8221;20px|auto|0px|auto|false|false&#8221; custom_margin_last_edited=&#8221;on|tablet&#8221; custom_padding=&#8221;|70px|0px||false|false&#8221; custom_padding_tablet=&#8221;|70px|0px||false|false&#8221; custom_padding_phone=&#8221;|0px|||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_5&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;e864d11f-3dab-4fa3-ac06-4f0e1a260807&#8243; header_font=&#8221;DM Sans||||||||&#8221; header_text_color=&#8221;#103638&#8243; header_font_size=&#8221;64px&#8221; header_letter_spacing=&#8221;-0.02em&#8221; header_line_height=&#8221;1.15em&#8221; custom_margin=&#8221;||16px||false|false&#8221; header_font_size_tablet=&#8221;40px&#8221; header_font_size_phone=&#8221;43px&#8221; header_font_size_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>Autoimmune diseases<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;41d5859c-fbaa-458a-88e4-5d886857f235&#8243; text_font=&#8221;|600|||||||&#8221; text_text_color=&#8221;#103638&#8243; text_font_size=&#8221;21px&#8221; min_height=&#8221;246px&#8221; custom_padding=&#8221;||5px|||&#8221; text_font_size_tablet=&#8221;20px&#8221; text_font_size_phone=&#8221;18px&#8221; text_font_size_last_edited=&#8221;on|phone&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>Women are four times more likely to develop autoimmune diseases than men, and many of these conditions negatively affect quality of life.<br \/><\/span><\/p>\n<p>This page provides information about autoimmune diseases, and our work in this area.<br \/><span><\/span><\/p>\n<p><span><\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;2_5&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; background_size=&#8221;contain&#8221; background_position=&#8221;bottom_center&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; height_tablet=&#8221;309px&#8221; height_phone=&#8221;208px&#8221; height_last_edited=&#8221;on|tablet&#8221; max_height=&#8221;1000px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#a7a2e5&#8243; positioning=&#8221;none&#8221; width=&#8221;100%&#8221; custom_margin=&#8221;||0px||false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; sticky_position=&#8221;top&#8221; da_disable_devices=&#8221;off|off|off&#8221; box_shadow_style=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row column_structure=&#8221;1_4,1_4,1_2&#8243; custom_padding_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;12px||13px||false|false&#8221; custom_padding_tablet=&#8221;12px||13px||false|false&#8221; custom_padding_phone=&#8221;||12px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|600|||||||&#8221; text_font_size=&#8221;21px&#8221; header_text_align=&#8221;center&#8221; custom_margin=&#8221;3px|||0px|false|false&#8221; custom_margin_tablet=&#8221;3px|||||&#8221; custom_margin_phone=&#8221;3px||-27px||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: center;\">Autoimmune diseases<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|700|||||||&#8221; text_orientation=&#8221;center&#8221; custom_margin=&#8221;3px||||false|false&#8221; custom_margin_tablet=&#8221;3px||||false|false&#8221; custom_margin_phone=&#8221;||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>On this page:<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_menu menu_id=&#8221;470&#8243; menu_style=&#8221;centered&#8221; submenu_direction=&#8221;downwards&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; menu_font=&#8221;|600|||||||&#8221; menu_text_color=&#8221;#103638&#8243; menu_font_size=&#8221;18px&#8221; background_enable_color=&#8221;off&#8221; min_height=&#8221;27px&#8221; custom_margin_tablet=&#8221;&#8221; custom_margin_phone=&#8221;-20px||||false|false&#8221; custom_margin_last_edited=&#8221;on|phone&#8221; sticky_position=&#8221;top&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_menu][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;2px||2px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_module=&#8221;201398&#8243; saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb use_icon=&#8221;on&#8221; font_icon=&#8221;&#xe060;||divi||400&#8243; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;196%&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; body_font_size=&#8221;17px&#8221; image_icon_custom_margin=&#8221;9px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>The following information is based on the lived experiences and priorities expressed to us by our community. If you need medical\/health advice, please contact a GP or medical professional. Read our\u00a0<a href=\"\/medical-disclaimer\">medical disclaimer<\/a><\/strong><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Cards&#8221; module_id=&#8221;about&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f1f2eb&#8221; custom_padding=&#8221;||4px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||7px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">What are autoimmune diseases?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||35px|||&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<ul>\n<li>Autoimmune diseases occur when the body\u2019s natural defence system (immune system) mistakenly attacks healthy parts of the body.<\/li>\n<li>These conditions can have a wide variety of symptoms and have a significant impact on quality of life.<\/li>\n<li>Autoimmune diseases are thought to affect 1 in 10 people in Wales,\u00a0 and approximately 80% of those living with autoimmune conditions will be female.<\/li>\n<\/ul>\n<p>Autoimmune diseases are complex, often affecting multiple systems and different parts of the body, so symptoms can vary in nature and in severity. Some people can have more than one autoimmune condition. They are also often progressive, meaning they can get worse if not identified early and treated. These conditions can have severe implications for overall health and wellbeing.<\/p>\n<p>The causes of autoimmune diseases are not fully understood but possibilities include genetics, hormones, reproductive health events like puberty, pregnancy, and menopause (which may play a part in explaining why these conditions are much more common in women than men), and viral infection.<\/p>\n<p>More research is needed to help us to understand why more women than men are affected, how to prevent these conditions from developing, speed up diagnosis, improve treatment options, or even come up with a cure!<\/p>\n<p>Rare Auto-Immune Rheumatic Diseases (RAIRDs), including <strong>Lupus<\/strong> and <strong>Sjogren\u2019s Syndrome<\/strong> affect approximately 9,500 people in Wales. At least 80% of those affected are female. Lupus is also more common in black and Asian women.<\/p>\n<p><strong>More information about the symptoms and treatments of autoimmune diseases can be found at on the NHS Wales website <a href=\"https:\/\/111.wales.nhs.uk\/encyclopaedia\/Default.aspx\" target=\"_blank\" rel=\"noopener\" title=\"Visit the NHS 111 website for more information about autoimmune conditions\">here<\/a>.<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Cards&#8221; module_id=&#8221;campaign&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f1f2eb&#8221; custom_padding=&#8221;15px||0px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row module_id=&#8221;campaign&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||34px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">What are we calling for?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;19px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; border_radii=&#8221;on|12px|12px|12px|12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><b>Our overall aim is to raise awareness, reduce diagnostic delays, and improve access <\/b><span class=\"s1\"><b>to specialist services for autoimmune diseases for patients in Wales.<\/b><\/span><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||-3px|||&#8221; custom_padding=&#8221;||37px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>We need to raise awareness of these conditions and particularly how they disproportionately impact females.<\/p>\n<p>Many women often report their symptoms not being taken seriously, resulting in delayed or missed diagnoses. We want to ensure women\u2019s voices are heard, and that the care offered to them optimal and timely.<\/p>\n<p>Testing for autoimmune conditions can be a bit hit and miss, highlighting the need for more research into diagnosis and effective treatment options.<\/p>\n<p>Given the seriousness of these conditions, it\u2019s important that specialist care is available to patients who need it, no matter where in Wales they live.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;19px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; border_radii=&#8221;on|12px|12px|12px|12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p class=\"p1\"><b>In Wales, <\/b><span class=\"s1\"><b>a lack of knowledge, understanding, and investment in <\/b><\/span><b>autoimmune diseases results in delays in diagnosis and barriers to accessing treatment <\/b><\/p>\n<p>[\/et_pb_text][et_pb_text ul_item_indent=&#8221;48px&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; ul_font_size=&#8221;17px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>In Wales, there is a lack of:<\/p>\n<ul>\n<li class=\"li1\"><span class=\"s1\"><\/span>Public awareness about autoimmune diseases and their impact<\/li>\n<li class=\"li1\">Information about symptoms, treatment, and services for patients affected in Wales<\/li>\n<li class=\"li1\">Research into autoimmune diseases and data specific to Wales \u2013 we need to know more about how women present with these conditions so we can better understand what causes them, their prevalence, and impact. We also need more research into how to best diagnose, manage, treat, even cure autoimmune diseases to improve the health and lives of all of those affected.<\/li>\n<li class=\"li1\"><span class=\"s1\"><\/span>Training <span class=\"s2\">or <\/span>information about autoimmune diseases amongst healthcare professionals, resulting in diagnostic delays and not always effective management <span class=\"s2\">or joined-up care.<\/span><\/li>\n<li class=\"li3\"><span class=\"s3\"><\/span><span class=\"s4\">Specialist <\/span>clinics or services for patients in Wales with autoimmune diseases.<\/li>\n<\/ul>\n<p>There are also postcode lotteries to specialist care, where only patients in certain health boards, or with enough disposable income to pay for private healthcare across the border (in England) can access it.<\/p>\n<p style=\"font-weight: 400;\">[\/et_pb_text][et_pb_text module_class=&#8221;list_spacing&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;19px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; border_radii=&#8221;on|12px|12px|12px|12px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><strong>We need to:<\/strong><\/p>\n<ul>\n<li>Make sure that autoimmune diseases feature as a priority in the NHS Wales Executive\u2019s MSK (Musculoskeletal Conditions) Network\u2019s strategic work programme, because this Network includes rheumatology services, which are usually responsible for patients with autoimmune conditions<\/li>\n<li>Ensure that the NHS Wales Executive\u2019s Women\u2019s Health Network and Plan apply a \u2018women\u2019s health lens\u2019 to the provision of care for autoimmune diseases, as the majority of patients affected will be female<\/li>\n<li class=\"li1\"><span class=\"s1\"><\/span>Encourage investment in research in Wales to better understand autoimmune diseases and how patients living with them can be helped and supported<\/li>\n<li>Work to overcome postcode lotteries for patients, so that being in the \u2018wrong\u2019 health board doesn\u2019t mean you can\u2019t access the specialist care you need, even if that means your own health board having to help you to travel<\/li>\n<li>Make sure that alongside specialist centres of excellence for autoimmune diseases, there is also good care closer to home, so that patients living with autoimmune conditions but a long way away from specialists can be monitored and supported in between specialist appointments<\/li>\n<li>Make sure that all patients suspecting or living with a diagnosed autoimmune disease have access to good quality, evidence-based information and peer support.<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;lead&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#003E51&#8243; custom_padding=&#8221;||3px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row column_structure=&#8221;1_3,2_3&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||54px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text module_id=&#8221;treatment&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#FFFFFF&#8221; header_text_color=&#8221;#FFFFFF&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; custom_margin=&#8221;||-1px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">Our champion: <span style=\"color: #a7a2e5;\">Wendy D<\/span><\/h2>\n<p>&nbsp;[\/et_pb_text][et_pb_image src=&#8221;https:\/\/ftww.org.uk\/wp-content\/uploads\/2024\/11\/Wendy-D-autoimmune.jpg&#8221; title_text=&#8221;Wendy-D-autoimmune&#8221; disabled_on=&#8221;off|off|off&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>&#8220;I am driven by this overwhelming sense of frustration and anger, of injustice, at the fact that in England, lupus patients can request to be seen by a lupus expert or attend an NHS LUPUS UK Centre of Excellence, and they have a right to a second opinion. It is their choice.<\/p>\n<p>Meanwhile, here in Wales we have no right to a second opinion from an expert of our choice and the system doesn\u2019t routinely or easily allow us to access a specialist centre.<\/p>\n<p>This is why I campaign with FTWW. &#8220;<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wcm9qZWN0Iiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjIwMTI2MiJ9fQ==@&#8221; button_text=&#8221;Read Wendy&#8217;s story&#8221; _builder_version=&#8221;4.24.0&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; button_text_color=&#8221;#a7a2e5&#8243; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;rgba(255,255,255,0.16)&#8221; button_bg_enable_color__hover=&#8221;on&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Cards&#8221; module_id=&#8221;achievements&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f1f2eb&#8221; custom_padding=&#8221;29px|||||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||19px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">What have we achieved?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||-3px|||&#8221; custom_padding=&#8221;||36px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Our campaign activity to improve the lives of those with autoimmune conditions is extensive. Some of our achievements are outlined below:<\/p>\n<p class=\"p1\">[\/et_pb_text][et_pb_icon font_icon=&#8221;&#xf0a1;||fa||900&#8243; icon_color=&#8221;#F8F7E7&#8243; icon_width=&#8221;38px&#8221; align=&#8221;left&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#a7a2e5&#8243; z_index=&#8221;-90&#8243; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;10px|10px|10px|10px|false|false&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; border_width_all=&#8221;8px&#8221; border_color_all=&#8221;RGBA(255,255,255,0)&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_icon][et_pb_text module_class=&#8221;list_spacing&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_5_font_size=&#8221;19px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_margin=&#8221;-128px||39px|71px|false|false&#8221; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; border_radii=&#8221;on|12px|12px|12px|12px&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_color=&#8221;rgba(0,0,0,0.13)&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h5><strong>We raise awareness through events, media, training and fundraising<\/strong><\/h5>\n<ul>\n<li class=\"li1\"><span class=\"s1\">We secure <\/span>national media coverage of the issues facing autoimmune patients in Wales<\/li>\n<li class=\"li2\"><span class=\"s2\"><\/span>We facilitate autoimmune patients\u2019 attendance at national events and conferences, where they have the opportunity to share their stories and expertise.<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_icon font_icon=&#8221;&#xf044;||fa||900&#8243; icon_color=&#8221;#F8F7E7&#8243; icon_width=&#8221;38px&#8221; align=&#8221;left&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#a7a2e5&#8243; z_index=&#8221;-90&#8243; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;10px|10px|10px|10px|false|false&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; border_width_all=&#8221;8px&#8221; border_color_all=&#8221;RGBA(255,255,255,0)&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_icon][et_pb_text module_class=&#8221;list_spacing&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; header_5_font_size=&#8221;19px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_margin=&#8221;-128px||39px|71px|false|false&#8221; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; hover_enabled=&#8221;0&#8243; border_radii=&#8221;on|12px|12px|12px|12px&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_color=&#8221;rgba(0,0,0,0.13)&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h5><strong>We take part in consultations, advisory boards and co-production of healthcare<\/strong><\/h5>\n<ul>\n<li>We&#8217;ve ensured autoimmune patients\u2019 experiences featured in responses to Senedd Inquiries, such as \u2018The Impact of NHS Waiting Lists\u2019 and \u2018Supporting Patients with Chronic Conditions\u2019, and Welsh Government consultations on topics like \u2018Putting Things Right\u2019 and the \u2018Duty of Quality\u2019<\/li>\n<li>We&#8217;ve included evidence about autoimmune conditions and recommendations in the <a href=\"https:\/\/ftww.org.uk\/womens-health-wales-quality-statement-english-final\/\" target=\"_blank\" rel=\"noopener\" title=\"Women\u2019s Health Wales Coalition\u2019s 2022 report\">Women\u2019s Health Wales Coalition\u2019s 2022 report<\/a><\/li>\n<li>We&#8217;ve helped to facilitate meetings and focus groups with <a href=\"https:\/\/www.llaiswales.org\/\" target=\"_blank\" rel=\"noopener\" title=\"Visit the Llais website\">Llais<\/a>, the independent statutory advocacy body for patients in Wales, to make them aware of gaps in services for patients across Wales with autoimmune diseases<\/li>\n<li>We&#8217;ve submitted evidence about autoimmune conditions and women\u2019s health to the NHS Wales Executive\u2019s MSK Network\u2019s Quality Statement and Plan<\/li>\n<li>We&#8217;ve continued to make sure that autoimmune diseases feature in the NHS Wales Women\u2019s Health Plan and related research in Wales<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_icon font_icon=&#8221;&#xf4c4;||fa||900&#8243; icon_color=&#8221;#F8F7E7&#8243; icon_width=&#8221;38px&#8221; align=&#8221;left&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#a7a2e5&#8243; z_index=&#8221;-90&#8243; custom_margin=&#8221;0px||||false|false&#8221; custom_padding=&#8221;10px|10px|10px|10px|false|false&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; border_width_all=&#8221;8px&#8221; border_color_all=&#8221;RGBA(255,255,255,0)&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_icon][et_pb_text module_class=&#8221;list_spacing&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_5_font_size=&#8221;19px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_margin=&#8221;-128px||12px|71px|false|false&#8221; custom_padding=&#8221;20px|20px|20px|20px|true|true&#8221; border_radii=&#8221;on|12px|12px|12px|12px&#8221; box_shadow_style=&#8221;preset1&#8243; box_shadow_color=&#8221;rgba(0,0,0,0.13)&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h5><strong>We engage directly with policy makers and researchers<\/strong><\/h5>\n<ul>\n<li><span class=\"s1\">We\u2019ve published a <\/span>pan-Wales <span class=\"s1\">patient-led report<\/span> about improving care and services for patients with rare autoimmune diseases like lupus <span class=\"s1\">and circulated to all health board Chief Executives in Wales<\/span><\/li>\n<\/ul>\n<ul><\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; module_id=&#8221;news&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">Related news and blogs<\/h2>\n<p>[\/et_pb_text][et_pb_blog fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;472&#8243; show_author=&#8221;off&#8221; show_categories=&#8221;off&#8221; show_excerpt=&#8221;off&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; module_alignment=&#8221;center&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blog][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;off|off|off&#8221; module_id=&#8221;stories&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#003E51&#8243; positioning=&#8221;none&#8221; custom_padding=&#8221;0px||3px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;56px||56px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text module_id=&#8221;treatment&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#FFFFFF&#8221; header_text_color=&#8221;#FFFFFF&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">Autoimmune disease stories<\/h2>\n<p>[\/et_pb_text][et_pb_portfolio fullwidth=&#8221;off&#8221; posts_number=&#8221;3&#8243; include_categories=&#8221;476&#8243; show_categories=&#8221;off&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; title_level=&#8221;h3&#8243; title_text_color=&#8221;#ffffff&#8221; title_font_size=&#8221;26px&#8221; title_line_height=&#8221;1.9em&#8221; background_layout=&#8221;dark&#8221; min_height=&#8221;126.8px&#8221; custom_padding=&#8221;||0px|||&#8221; border_radii_image=&#8221;on|10px|10px|10px|10px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_portfolio][et_pb_button button_url=&#8221;\/story\/&#8221; button_text=&#8221;View all stories&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; button_text_color=&#8221;#a7a2e5&#8243; global_colors_info=&#8221;{}&#8221; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;rgba(255,255,255,0.16)&#8221; button_bg_enable_color__hover=&#8221;on&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;on|on|on&#8221; admin_label=&#8221;Cards&#8221; module_id=&#8221;about&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f1f2eb&#8221; custom_padding=&#8221;||4px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||19px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">What is autism and other neurodivergences?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Autism is a neurodevelopmental condition characterised by social communication differences and a need for routine and consistency which is often observed as repetitive, stereotyped behaviours.<\/p>\n<p>Attention Deficit Hyperactivity Disorder (ADHD) is another neurodevelopmental condition characterised by attention differences &#8211; typically difficulty maintaining attention, difficulty in switching attention (hyperfocus), or both &#8211; and difficulties with executive function.<\/p>\n<p>Women, girls, and those registered female at birth often have their difficulties overlooked because of outdated stereotypes and misconceptions of autism.<\/p>\n<p>Around 1.1% of the population is autistic &#8211; that means 17,000 women in Wales could be autistic. ADHD prevalence figures vary, though NHS England states 3-5% of children and 2% of adults equating to a possible 31,800 women. However, due to inequitable diagnosis, official figures for women are lower.<\/p>\n<p>[\/et_pb_text][et_pb_text module_id=&#8221;symptoms&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">What are the characteristics?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Communication and social interaction differences:<\/p>\n<ul>\n<li><span><span><span>Autistic people may find it difficult to understand what others are feeling, or to read facial expressions.<\/span><\/span><\/span><\/li>\n<li><span><span><span>Austic people may feel overwhelmed in social situations or when meeting new people<\/span><\/span><\/span><\/li>\n<\/ul>\n<p>Restricted and repetitive behaviours and interests:<\/p>\n<ul>\n<li>Autistic people may show self-soothing or self-regulating behaviours<\/li>\n<li>Austistic people may have interests that they are very focused on and dedicated to<\/li>\n<\/ul>\n<p>Sensory differences<\/p>\n<ul>\n<li>Autistic people can be more sensitive to sound, light, smells, tastes and other sensations<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text module_id=&#8221;diagnosis&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">How is it diagnosed?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>In the UK, the process of diagnosing autism for both children and adults is thorough and multifaceted. It often begins with a referral from a GP or another healthcare professional to a specialist for a comprehensive assessment. This assessment is about identifying the condition and understanding its depth and breadth in the individual.<\/p>\n<p>An autism diagnosis should be based on criteria listed in the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition (DSM-5) or the International Classification of Diseases 11th Revision (ICD-11), according to the National Institute for Health and Care Excellence (NICE) guidelines.<\/p>\n<p>Although many people (including most autistic people) do not consider autism to be a disorder, and autism is not a disease, these manuals are the standard classification systems used by health care professionals to assess and diagnose autism.<\/p>\n<p>[\/et_pb_text][et_pb_text module_id=&#8221;treatment&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">What is the treatment?<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Support is offered post diagnosis in some cases to help a individual understand how their autism impacts them and to develop a toolkit of strategies and coping mechanisms such as sensory profiles and support to disclose and ask for adjustments.<\/p>\n<p>Mental health support needs to be adapted for autistic and neurodivergent people and needs to be provided by practitioners who have a good understanding of autism and neurodivergent conditions and who operates in neurodiversity affirming way<br \/>Access needs are addressed by provision of Communication and Hospital Profiles.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; disabled_on=&#8221;off|off|off&#8221; admin_label=&#8221;Cards&#8221; module_id=&#8221;advocacy&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;gcid-7b46fb6c-c514-4554-bd32-6a4fa27b792a&#8221; custom_padding=&#8221;21px||4px|||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_module=&#8221;202621&#8243; global_colors_info=&#8221;{%22gcid-7b46fb6c-c514-4554-bd32-6a4fa27b792a%22:%91%22background_color%22%93}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||63px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;gcid-c95dc54a-2f3f-4a8b-8981-6a040a1dc024&#8243; background_layout=&#8221;dark&#8221; global_colors_info=&#8221;{%22gcid-c95dc54a-2f3f-4a8b-8981-6a040a1dc024%22:%91%22header_2_text_color%22%93}&#8221;]<\/p>\n<h2 style=\"text-align: left;\">Advocating for yourself or someone else<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Many women find it difficult to discuss health issues and seek support, even if these health issues are having a significant impact on their lives.<\/p>\n<p>We&#8217;re working with our community to develop tools and tips to help women to speak up, and provide guidance for people who would like to support their loved ones, friends, colleagues or patients who are living with health conditions.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;3px||48px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Self advocacy tookit&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf56d;||fa||900&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;20px&#8221; background_color=&#8221;#f7f7f7&#8243; custom_padding=&#8221;16px|16px|16px|16px|true|true&#8221; link_option_url=&#8221;\/wp-content\/uploads\/2024\/05\/FTWW-Final-AIR-22-23-Eng.docx&#8221; link_option_url_new_window=&#8221;on&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221; background__hover_enabled=&#8221;on|hover&#8221; background_color__hover=&#8221;#ffffff&#8221; background_enable_color__hover=&#8221;on&#8221;]<\/p>\n<p>This report provides detailed information about FTWW\u2019s work, achievements, and finances during the 12 months from April 2022 to March 2023.<\/p>\n<p>[\/et_pb_blurb][et_pb_button button_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjIwMjM3NyJ9fQ==@&#8221; button_text=&#8221;Get tips and advice&#8221; button_alignment=&#8221;left&#8221; _builder_version=&#8221;4.24.0&#8243; _dynamic_attributes=&#8221;button_url&#8221; _module_preset=&#8221;default&#8221; button_text_size=&#8221;16px&#8221; button_text_color=&#8221;gcid-c95dc54a-2f3f-4a8b-8981-6a040a1dc024&#8243; button_border_radius=&#8221;39px&#8221; custom_margin=&#8221;-29px||0px||false|false&#8221; button_bg_color_tablet=&#8221;&#8221; button_bg_color_phone=&#8221;&#8221; button_bg_color_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{%22gcid-c95dc54a-2f3f-4a8b-8981-6a040a1dc024%22:%91%22button_text_color%22,%22button_text_color__hover%22%93}&#8221; button_text_color__hover_enabled=&#8221;on|hover&#8221; button_text_color__hover=&#8221;#195942&#8243; button_bg_color__hover_enabled=&#8221;on|hover&#8221; button_bg_color__hover=&#8221;#ffffff&#8221; button_bg_enable_color__hover=&#8221;on&#8221;][\/et_pb_button][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf044;||fa||900&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>This gu<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Writing to your Senedd Member &#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf044;||fa||900&#8243; icon_placement=&#8221;left&#8221; disabled_on=&#8221;on|on|on&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_layout=&#8221;dark&#8221; disabled=&#8221;on&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>This gu<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Cards&#8221; module_id=&#8221;documents-links&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#f1f2eb&#8221; custom_padding=&#8221;7px|||||&#8221; da_disable_devices=&#8221;off|off|off&#8221; global_colors_info=&#8221;{}&#8221; da_is_popup=&#8221;off&#8221; da_exit_intent=&#8221;off&#8221; da_has_close=&#8221;on&#8221; da_alt_close=&#8221;off&#8221; da_dark_close=&#8221;off&#8221; da_not_modal=&#8221;on&#8221; da_is_singular=&#8221;off&#8221; da_with_loader=&#8221;off&#8221; da_has_shadow=&#8221;on&#8221;][et_pb_row _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text module_id=&#8221;documents&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_2_text_color=&#8221;#19583B&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Useful links and documents<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;FTWW&#8217;s bi-lingual Autoimmune leaflet&#8221; url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9hdHRhY2htZW50Iiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI1MDgxNSJ9fQ==@&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf518;||fa||900&#8243; icon_color=&#8221;#D83845&#8243; icon_placement=&#8221;left&#8221; _builder_version=&#8221;4.24.0&#8243; _dynamic_attributes=&#8221;link_option_url,url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;20px&#8221; background_color=&#8221;#ffffff&#8221; custom_padding=&#8221;16px|16px|16px|16px|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9hdHRhY2htZW50Iiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjI1MDgxNSJ9fQ==@&#8221; link_option_url_new_window=&#8221;on&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>This flyer provides a brief overview of our work in this area and why it is needed<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Making the Case for Better Lupus and Rare Auto-Immune Disease Provision for Patients in Wales (2021)&#8221; url=&#8221;\/wp-content\/uploads\/2024\/11\/Making-the-Case-for-Better-Lupus-and-Rare-Auto-Immune-Disease-Provision-for-Patients-in-Wales-Final.pdf&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf15c;||fa||900&#8243; icon_color=&#8221;#D83845&#8243; icon_placement=&#8221;left&#8221; _builder_version=&#8221;4.24.0&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;20px&#8221; background_color=&#8221;#ffffff&#8221; custom_padding=&#8221;16px|16px|16px|16px|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9hdHRhY2htZW50Iiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjIwMTA4NyJ9fQ==@&#8221; link_option_url_new_window=&#8221;on&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_module=&#8221;203843&#8243; saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Read this report compiled by FTWW<\/p>\n<p>[\/et_pb_blurb][et_pb_blurb title=&#8221;Women&#8217;s Health Wales: A Quality Statement for the Health of Women, Girls and those Assigned Female at Birth 2022&#8243; url=&#8221;\/wp-content\/uploads\/2024\/07\/Womens-Health-Wales-Quality-Statement-English-FINAL.pdf&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf570;||fa||900&#8243; icon_color=&#8221;#D83845&#8243; icon_placement=&#8221;left&#8221; _builder_version=&#8221;4.27.5&#8243; _dynamic_attributes=&#8221;link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;20px&#8221; background_color=&#8221;#ffffff&#8221; custom_padding=&#8221;16px|16px|16px|16px|true|true&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9hdHRhY2htZW50Iiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjE5NjEwNyJ9fQ==@&#8221; link_option_url_new_window=&#8221;on&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_module=&#8221;201216&#8243; saved_tabs=&#8221;all&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><span>Read more about our recommendations to the Welsh Government in this report by the #WomensHealthWales coalition\u00a0<\/span><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Rheumatology.org.uk&#8221; url=&#8221;https:\/\/www.rheumatology.org.uk\/&#8221; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf245;||fa||900&#8243; icon_color=&#8221;#D83845&#8243; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;25px&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;19px&#8221; background_enable_color=&#8221;off&#8221; image_icon_custom_margin=&#8221;|0px||15px|false|false&#8221; image_icon_custom_padding=&#8221;||||false|false&#8221; custom_margin=&#8221;||12px|||&#8221; custom_padding=&#8221;0px|0px|0px|0px|true|true&#8221; link_option_url_new_window=&#8221;on&#8221; hover_enabled=&#8221;0&#8243; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_blurb][et_pb_blurb title=&#8221;Lupus UK&#8221; url=&#8221;https:\/\/lupusuk.org.uk\/&#8221; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf245;||fa||900&#8243; icon_color=&#8221;#D83845&#8243; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;25px&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;19px&#8221; background_enable_color=&#8221;off&#8221; image_icon_custom_margin=&#8221;|0px||15px|false|false&#8221; image_icon_custom_padding=&#8221;||||false|false&#8221; custom_margin=&#8221;||12px|||&#8221; custom_padding=&#8221;0px|0px|0px|0px|true|true&#8221; link_option_url_new_window=&#8221;on&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Sj\u00f6gren&#8217;s UK&#8221; url=&#8221;https:\/\/sjogrensuk.org\/&#8221; url_new_window=&#8221;on&#8221; use_icon=&#8221;on&#8221; font_icon=&#8221;&#xf245;||fa||900&#8243; icon_color=&#8221;#D83845&#8243; icon_placement=&#8221;left&#8221; image_icon_width=&#8221;25px&#8221; _builder_version=&#8221;4.24.0&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|600|||||||&#8221; header_font_size=&#8221;19px&#8221; background_enable_color=&#8221;off&#8221; image_icon_custom_margin=&#8221;|0px||15px|false|false&#8221; image_icon_custom_padding=&#8221;||||false|false&#8221; custom_margin=&#8221;||12px|||&#8221; custom_padding=&#8221;0px|0px|0px|0px|true|true&#8221; link_option_url_new_window=&#8221;on&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; 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