[et_pb_section fb_built=”1″ admin_label=”Header” _builder_version=”4.24.0″ _module_preset=”default” background_color=”#ea9dab” background_image=”https:\/\/ftww.org.uk\/wp-content\/uploads\/2024\/06\/woman_4.png” background_size=”contain” background_position=”bottom_right” background_blend=”multiply” custom_padding=”40px||24px||false|false” background_last_edited=”on|phone” background_image_phone=”https:\/\/ftww.org.uk\/wp-content\/uploads\/2024\/06\/woman_4.png” background_enable_image_phone=”on” background_size_tablet=”custom” background_image_width_tablet=”75%” background_image_width_phone=”100%” background_position_tablet=”bottom_center” background_position_phone=”bottom_center” da_disable_devices=”off|off|off” border_radii=”on|0px|0px|0px|0px” box_shadow_style=”preset3″ locked=”off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row column_structure=”3_5,2_5″ custom_padding_last_edited=”on|desktop” _builder_version=”4.24.0″ _module_preset=”default” height_tablet=”” height_phone=”” height_last_edited=”on|phone” custom_margin=”0px|auto|0px|auto|false|false” custom_margin_tablet=”20px|auto|0px|auto|false|false” custom_margin_phone=”20px|auto|0px|auto|false|false” custom_margin_last_edited=”on|tablet” custom_padding=”|70px|0px||false|false” custom_padding_tablet=”|70px|0px||false|false” custom_padding_phone=”|0px|||false|false” global_colors_info=”{}”][et_pb_column type=”3_5″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”e864d11f-3dab-4fa3-ac06-4f0e1a260807″ header_font=”DM Sans||||||||” header_text_color=”#103638″ header_font_size=”64px” header_letter_spacing=”-0.02em” header_line_height=”1.15em” custom_margin=”||16px||false|false” header_font_size_tablet=”40px” header_font_size_phone=”43px” header_font_size_last_edited=”on|desktop” locked=”off” global_colors_info=”{}”]<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.24.0″ _module_preset=”41d5859c-fbaa-458a-88e4-5d886857f235″ text_font=”|600|||||||” text_text_color=”#103638″ text_font_size=”21px” min_height=”246px” custom_padding=”||5px|||” text_font_size_tablet=”20px” text_font_size_phone=”18px” text_font_size_last_edited=”on|phone” locked=”off” global_colors_info=”{}”]<\/p>\n
Adenomyosis impacts at least 1 in 10 women and people with a uterus – that’s at least 158,660 patients in Wales. Despite this, few people have heard of it – even those living with it.<\/span><\/p>\n This page provides information on adenomyosis and our work to improve awareness of this health issue. <\/span><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”2_5″ _builder_version=”4.24.0″ _module_preset=”default” background_enable_image=”off” background_size=”contain” background_position=”bottom_center” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” height_tablet=”309px” height_phone=”208px” height_last_edited=”on|tablet” max_height=”1000px” global_colors_info=”{}”][\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.24.0″ _module_preset=”default” background_color=”#ea9dab” positioning=”none” width=”100%” custom_margin=”||0px||false|false” custom_padding=”0px||0px||false|false” sticky_position=”top” da_disable_devices=”off|off|off” box_shadow_style=”preset1″ global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row column_structure=”1_4,1_4,1_2″ custom_padding_last_edited=”on|phone” _builder_version=”4.24.0″ _module_preset=”default” custom_padding=”12px||13px||false|false” custom_padding_tablet=”12px||13px||false|false” custom_padding_phone=”||12px||false|false” global_colors_info=”{}”][et_pb_column type=”1_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” text_font=”|600|||||||” text_font_size=”21px” header_text_align=”center” custom_margin=”3px|||||” custom_margin_tablet=”3px|||||” custom_margin_phone=”3px||-27px||false|false” custom_margin_last_edited=”on|phone” global_colors_info=”{}”]<\/p>\n Adenomyosis<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” text_font=”|700|||||||” text_orientation=”center” custom_margin=”3px||||false|false” custom_margin_tablet=”3px||||false|false” custom_margin_phone=”||||false|false” custom_margin_last_edited=”on|phone” global_colors_info=”{}”]<\/p>\n On this page:<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_menu menu_id=”470″ menu_style=”centered” submenu_direction=”downwards” _builder_version=”4.24.0″ _module_preset=”default” menu_font=”|600|||||||” menu_text_color=”#103638″ menu_font_size=”18px” background_enable_color=”off” min_height=”27px” custom_margin_tablet=”” custom_margin_phone=”-20px||||false|false” custom_margin_last_edited=”on|phone” sticky_position=”top” global_colors_info=”{}”][\/et_pb_menu][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.24.0″ _module_preset=”default” custom_padding=”2px||2px|||” da_disable_devices=”off|off|off” global_module=”201398″ saved_tabs=”all” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_blurb use_icon=”on” font_icon=”||divi||400″ icon_placement=”left” image_icon_width=”196%” content_max_width=”100%” _builder_version=”4.24.0″ _module_preset=”default” body_font_size=”17px” image_icon_custom_margin=”9px||||false|false” global_colors_info=”{}”]<\/p>\n The following information is based on the lived experiences and priorities expressed to us by our community. If you need medical\/health advice, please contact a GP or medical professional. Read our\u00a0medical disclaimer<\/a><\/strong><\/p>\n [\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Cards” _builder_version=”4.24.0″ _module_preset=”default” background_color=”#f1f2eb” custom_padding=”||0px|||” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” custom_padding=”||9px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” header_2_text_color=”#19583B” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||-3px|||” custom_padding=”||37px|||” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n Adenomyosis is commonly seen alongside Endometriosis <\/a>and fibroids, and can share similar symptoms. Like other gynaecological conditions, many people don\u2019t realise they have adenomyosis or are sometimes wrongly diagnosed, and diagnostic delays persist.<\/p>\n More information about Adenomyosis symptoms and treatments can be found at on the NHS Wales website here<\/a>. [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Cards” module_id=”campaign” _builder_version=”4.24.0″ _module_preset=”default” background_color=”#f1f2eb” custom_padding=”0px||0px|||” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row module_id=”campaign” _builder_version=”4.24.0″ _module_preset=”default” custom_padding=”||34px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” header_2_text_color=”#19583B” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” text_font_size=”19px” background_color=”#f7f7f7″ custom_padding=”20px|20px|20px|20px|true|true” border_radii=”on|12px|12px|12px|12px” global_colors_info=”{}”]<\/p>\n Our overall aim is to raise awareness of this common but poorly understood condition<\/strong><\/p>\n [\/et_pb_text][et_pb_text ul_item_indent=”48px” _builder_version=”4.24.0″ _module_preset=”default” ul_font_size=”17px” global_colors_info=”{}”]<\/p>\n Adenomyosis impacts at least 1 in 10 women and people with a uterus – that’s at least 158,660 patients in Wales.\u00a0 Despite this, few people have heard of it – even those living with it.<\/p>\n There is also a historic lack of training and exposure to the condition among doctors – and even those training to become gynaecologists. This is paired with a historic lack of research and data when in comes to health issues which predominantly or uniquely affect females, contributing to the lack of reliable information.<\/p>\n By raising awareness of adenomyosis, we can help in driving improvements in diagnosis and treatment of the condition in Wales.<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” text_font_size=”19px” background_color=”#f7f7f7″ custom_padding=”20px|20px|20px|20px|true|true” border_radii=”on|12px|12px|12px|12px” global_colors_info=”{}”]<\/p>\n In Wales, people with adenomyosis often experience delays in diagnosis and treatment<\/strong><\/p>\n [\/et_pb_text][et_pb_text ul_item_indent=”48px” _builder_version=”4.24.0″ _module_preset=”default” ul_font_size=”17px” global_colors_info=”{}”]<\/p>\n Firstly, a lack of awareness of adenomyosis means that it can take people longer to seek help, for a number of reasons:<\/p>\n When seeking help, many of those living with adenomyosis will encounter significant barriers:<\/p>\n [\/et_pb_text][et_pb_text module_class=”list_spacing” _builder_version=”4.24.0″ _module_preset=”default” text_font_size=”19px” background_color=”#f7f7f7″ custom_padding=”20px|20px|20px|20px|true|true” border_radii=”on|12px|12px|12px|12px” global_colors_info=”{}”]<\/p>\n We need to:<\/strong><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_id=”lead” _builder_version=”4.24.0″ _module_preset=”default” background_color=”gcid-dd883e85-202b-42bc-b4bb-6fd0abbfcf90″ custom_padding=”||3px|||” da_disable_devices=”off|off|off” global_colors_info=”{%22gcid-dd883e85-202b-42bc-b4bb-6fd0abbfcf90%22:%91%22background_color%22%93}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row column_structure=”1_3,2_3″ _builder_version=”4.24.0″ _module_preset=”default” custom_padding=”||54px|||” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text module_id=”treatment” _builder_version=”4.24.0″ _module_preset=”default” text_text_color=”#FFFFFF” header_text_color=”#FFFFFF” header_2_text_color=”#FFFFFF” custom_margin=”||-1px|||” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/ftww.org.uk\/wp-content\/uploads\/2025\/05\/DonnaB_adeno.jpg” alt=”Donna B, FTWW’s Adenomyosis champion” title_text=”Donna B, FTWW’s Adenomyosis champion” disabled_on=”off|off|off” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” background_layout=”dark” custom_padding=”||0px|||” global_colors_info=”{}”]<\/p>\n “Like so many other FTWW members, I have experienced symptoms related to my periods that were normalised and dismissed for such a long time that I now have additional health issues as a result.<\/p>\n I was eventually diagnosed with endometriosis, but my symptoms persisted after surgery, resulting in my hysterectomy. I was very lucky to be able to have my son before going through with this final option.<\/p>\n I was very lucky to be able to have my son before going through with this final option. So many others are unable to have children or have to go private to access the healthcare they need. In the home of the NHS, no one should be forced to do this.<\/p>\n Due to my health issues I had to leave employment and finding my way back into work is incredibly hard – largely because many employers don’t understand the impact ‘women’s health’ conditions can have.”<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Cards” module_id=”achievements” _builder_version=”4.24.0″ _module_preset=”default” background_color=”#f1f2eb” custom_padding=”29px|||||” da_disable_devices=”off|off|off” global_colors_info=”{}” da_is_popup=”off” da_exit_intent=”off” da_has_close=”on” da_alt_close=”off” da_dark_close=”off” da_not_modal=”on” da_is_singular=”off” da_with_loader=”off” da_has_shadow=”on”][et_pb_row _builder_version=”4.24.0″ _module_preset=”default” custom_padding=”||19px|||” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.24.0″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” header_2_text_color=”#19583B” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.24.0″ _module_preset=”default” custom_margin=”||-3px|||” custom_padding=”||50px|||” global_colors_info=”{}”]The achievements of our campaign activity to improve awareness of adenomyosis are below.[\/et_pb_text][et_pb_icon font_icon=”||fa||900″ icon_color=”#F8F7E7″ icon_width=”38px” align=”left” _builder_version=”4.24.0″ _module_preset=”default” background_color=”#ea9dab” z_index=”-90″ custom_margin=”0px||||false|false” custom_padding=”10px|10px|10px|10px|false|false” border_radii=”on|10px|10px|10px|10px” border_width_all=”8px” border_color_all=”RGBA(255,255,255,0)” global_colors_info=”{}”][\/et_pb_icon][et_pb_text module_class=”list_spacing” _builder_version=”4.27.6″ _module_preset=”default” background_color=”#f7f7f7″ custom_margin=”-128px||39px|71px|false|false” custom_padding=”20px|20px|20px|20px|true|true” hover_enabled=”0″ border_radii=”on|12px|12px|12px|12px” box_shadow_style=”preset1″ box_shadow_color=”rgba(0,0,0,0.13)” global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n We raise awareness through events, media, training and fundraising<\/strong><\/p>\n [\/et_pb_text][et_pb_icon font_icon=”||fa||900″ icon_color=”#F8F7E7″ icon_width=”38px” align=”left” _builder_version=”4.24.0″ _module_preset=”default” background_color=”#ea9dab” z_index=”-90″ custom_margin=”0px||||false|false” custom_padding=”10px|10px|10px|10px|false|false” border_radii=”on|10px|10px|10px|10px” border_width_all=”8px” border_color_all=”RGBA(255,255,255,0)” global_colors_info=”{}”][\/et_pb_icon][et_pb_text module_class=”list_spacing” _builder_version=”4.27.6″ _module_preset=”default” background_color=”#f7f7f7″ custom_margin=”-128px||39px|71px|false|false” custom_padding=”20px|20px|20px|20px|true|true” hover_enabled=”0″ border_radii=”on|12px|12px|12px|12px” box_shadow_style=”preset1″ box_shadow_color=”rgba(0,0,0,0.13)” global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n
<\/span><\/p>\nWhat is adenomyosis?<\/h2>\n
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\n<\/strong><\/p>\nWhat are we calling for?<\/h2>\n
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Our champion: Donna B<\/span><\/h2>\n
What have we achieved?<\/h2>\n
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