{"id":200523,"date":"2024-05-16T11:39:01","date_gmt":"2024-05-16T10:39:01","guid":{"rendered":"https:\/\/ftww.org.uk\/?p=193626"},"modified":"2025-01-28T14:18:14","modified_gmt":"2025-01-28T14:18:14","slug":"breaking-the-silence-on-gynaecological-cancers-and-beyond","status":"publish","type":"post","link":"https:\/\/ftww.org.uk\/cy\/2024\/05\/16\/breaking-the-silence-on-gynaecological-cancers-and-beyond\/","title":{"rendered":"Rhoi Sylw i Ganserau Gynaecolegol - a mwy!"},"content":{"rendered":"

\"AnDatganiad FTWW ar Ymchwiliad Pwyllgor Iechyd a Gofal Cymdeithasol y Senedd i Ganser Gynaecolegol a dadl yn y Cyfarfod Llawn (15\/05\/24)<\/span><\/p>\n

Rhoi Sylw i Ganserau Gynaecolegol - a mwy!<\/strong><\/p>\n

Ar \u00f4l cyfrannu\u2019n helaeth at yr ymchwiliad diweddar i ganserau gynaecolegol a gynhaliwyd gan Bwyllgor Iechyd a Gofal Cymdeithasol y Senedd, roedd FTWW yn awyddus i ddarllen ymateb Llywodraeth Cymru i adroddiad dilynol y Pwyllgor, Heb lais: Taith Menywod Trwy Ganser Gynaecolegol<\/strong><\/a>.<\/p>\n

Er bod mwyafrif helaeth ei argymhellion wedi\u2019u derbyn gan Ysgrifennydd y Cabinet dros Iechyd a Gofal Cymdeithasol, Eluned Morgan, gwrthodwyd rhai \u2013 ac, felly, roedd y ddadl yn y sesiwn lawn ddoe yn y Senedd yn hanfodol i esbonio\u2019r penderfyniadau hynny, yn anad dim, oherwydd, fel y dywedodd Russell George, Cadeirydd y Pwyllgor, \u2018y dystiolaeth oedd y mwyaf pwerus ac emosiynol yr wyf wedi dod ar ei thraws\u2019.<\/p>\n

Efallai mai\u2019r hyn oedd angen ei egluro fwyaf oedd honiad Llywodraeth Cymru fod,mwyafrif helaeth y rhai sy\u2019n derbyn gofal canser ar gyfer canser gynaecolegol yn adrodd yn gyson am lefelau uchel o fodlonrwydd cleifion \u00e2 gwasanaethau\u2019r GIG<\/strong><\/a>\u2018, er bod y rhai a roddodd dystiolaeth bersonol i\u2019r ymchwiliad yn dweud i\u2019r gwrthwyneb \u2013 nad oeddent erioed wedi cael eu holi am eu lefelau bodlonrwydd. Yn wir, roedd y dystiolaeth ddirdynnol a rannwyd yn ystod yr ymchwiliad yn cyfleu cryn anfodlonrwydd. Mae clywed<\/em> yr hyn sydd gan gleifion i\u2019w ddweud yn gam cyntaf hanfodol wrth greu gwasanaethau iechyd sy\u2019n gweithio i gleifion, felly mae\u2019n rhaid i\u2019r casgliad, y dadansoddiad a\u2019r dysgu arferol sy\u2019n deillio o PREMs a PROMs (Mesur Profiadau a Gofnodwyd gan Gleifion a Mesurau Canlyniadau) gael eu blaenoriaethu gan GIG Cymru wrth symud ymlaen, rhywbeth y mae FTWW yn parhau i ddadlau\u2019n gryf drosto.<\/p>\n

Roeddem hefyd yn gwybod y byddai\u2019r Cynllun Iechyd Menywod yr ydym ni \u2013 a Chlymblaid Iechyd Menywod Cymru sy\u2019n cael ei gadeirio gennym<\/strong><\/a> \u2013 wedi bod yn galw amdano ers 2021, yn cael ei ddyfynnu fel dogfen allweddol sy\u2019n sbarduno gwelliannau i\u2019r profiadau a adroddwyd gan y rhai yr effeithiwyd arnynt gan ganserau gynaecolegol, ac ni chawsom ein siomi. Cafodd y Cynllun \u2013 nad yw wedi\u2019i gyhoeddi eto, er bod gwaith yn dechrau\u2019n arno\u2019n fuan \u2013 ei grybwyll gan bob Aelod o\u2019r Senedd a gymerodd ran yn y ddadl. Yn olaf \u2013 ac nid cyn pryd \u2013 mae\u2019n edrych fel petai iechyd menywod wedi cyrraedd yr agenda fel mater sy\u2019n mynd y tu hwnt i wleidyddiaeth plaid, rhywbeth sy\u2019n cyffwrdd \u00e2 phob dinesydd yng Nghymru a phob unigolyn ar draws y byd.<\/p>\n

Er bod Ysgrifennydd y Cabinet yn honni na fydd canserau gynaecolegol o reidrwydd yn cael eu cynnwys yn benodol yng Nghynllun Iechyd Menywod, y mae hi wedi ymrwymo\u2019r GIG iddo (mae hyn oherwydd bod rhwydwaith clinigol a chynllun gwella ar wah\u00e2n ar gyfer canser), byddem yn dadlau bod yna gysylltiad anochel, felly mae angen i\u2019r Cynllun Iechyd Menywod egluro ei gysylltiadau \u00e2\u2019r gwaith sydd ar y gweill ar ganser, gan gynnwys camau i fynd i\u2019r afael \u00e2 materion yn ymwneud \u00e2\u2019r gweithlu a chapasiti mewn lleoliadau gynaecoleg. Nid yn unig hyn, fodd bynnag, \u2013 mae agweddau sy\u2019n unigryw i brofiadau menywod o ofal iechyd y mae\u2019n rhaid eu cydnabod a\u2019u herio yn uniongyrchol os ydym am wella\u2019r gwasanaethu a gynigir i gleifion, p\u2019un a oes ganddynt symptomau canser gynaecolegol neu gyflwr iechyd arall.<\/p>\n

Efallai mai\u2019r mwyaf arwyddocaol o\u2019r rhain sydd wedi arwain at deitl adroddiad y Pwyllgor \u2013 \u2018Heb lais\u2019 \u2013 ac a arweiniodd at greu FTWW dros ddeng mlynedd yn \u00f4l: y ffaith bod menywod bron i gyd yn dweud bod y symptomau a adroddir ganddynt yn cael eu hanwybyddu, eu diystyru a\u2019u cam-briodoli i ffactorau emosiynol neu seicolegol, bod eu lleisiau ddim yn cael eu clywed oherwydd y sylw sylweddol i agweddau cymdeithasol sy\u2019n deillio o fil o flynyddoedd o ragfarn ar sail rhyw, lle\u2019r oedd cysylltiad annatod rhwng y \u2018groth\u2019 (wandering womb) \u00e2 meddyliau gwan ac annibynadwy merched, cyflwr yr arferid cyfeirio ato yn y gorffennol fel \u2018hysteria\u2019. Mae\u2019n gysyniad sy\u2019n parhau i daflu cysgod hir a pharhaus dros ein profiadau gofal iechyd ac mae\u2019n rhaid ei ddileu os ydym am weld pethau\u2019n newid er gwell.<\/p>\n

Mae cynnwys pobl sydd \u00e2 phrofiad personol o gynllunio, cyflwyno ac asesu addysg feddygol yn un o\u2019r ffyrdd mwyaf effeithiol o sicrhau bod lleisiau cleifion yn cael eu cymryd o ddifrif a\u2019u gwreiddio\u2019n briodol yn yr hyfforddiant y mae ein gweithwyr gofal iechyd proffesiynol yn ei dderbyn a\u2019r gwasanaethau y maent yn eu darparu \u2013 ac mae hyn yn rhywbeth y bydd FTWW yn parhau i ymgyrchu drosto. Mae angen i ni hefyd weld addysg lles mislifol yn cael ei chyflwyno\u2019n gyson ac yn dda mewn ysgolion, fel nad yw\u2019r mislif a symptomau cysylltiedig yn ormod o dab\u0175 i\u2019w crybwyll, neu wedi\u2019u normaleiddio i\u2019r graddau y caiff merched eu gwneud i feddwl eu bod yn gwneud ffwdan am ddim byd, canfyddiad a all amharu ar eu rhagolygon addysgol, eu gyrfaoedd, eu bywydau a\u2019u lles ymhell i\u2019r dyfodol.<\/p>\n

Yn raddol, mae pethau\u2019n symud i\u2019r cyfeiriad cywir, gyda phrosiectau ymchwil a ariennir gan Lywodraeth Cymru fel SPPINN (Dydi Poen Mislif Difrifol Ddim yn Normal)<\/strong><\/a> yn archwilio\u2019r heriau a\u2019r bylchau wrth reoli\u2019r mater hwn sy\u2019n rhy aml yn cael ei gamddeall a\u2019i ddiystyru, a rhwydwaith clinigol cenedlaethol ar gyfer gynaecoleg sy\u2019n datblygu llwybrau Cymru gyfan ar gyfer cleifion mewn gofal eilaidd. Fodd bynnag, er bod y pethau hyn yn hanfodol, ac rydym yn rhagweld y byddant yn ymddangos yng ngwaith Llywodraeth Cymru ar urddas mislif, polisi iechyd menywod, a Chynllun Iechyd Menywod y GIG, mae anwyliaid yn cael eu colli yn sgil canser gynaecolegol bob dydd \u2013 a\u2019r hyn sy\u2019n frawychus yw bod cyfradd marwolaethau yn uwch yng Nghymru nag unrhyw le arall yn y DU.<\/p>\n

It doesn’t take a Women’s\u00a0Health Plan to know that, now, more than ever, things must change. Let’s start by recognising that gynaecological cancers aren’t ‘silent killers’ – women have been asking, begging, shouting to be heard for far too long. Now is the time to start listening.<\/p>","protected":false},"excerpt":{"rendered":"

FTWW Statement on Senedd Health & Social Care Committee Inquiry into Gynaecological Cancers & Plenary debate (15\/05\/24) Breaking the Silence on Gynaecological Cancers – and Beyond! Having contributed extensively to […]<\/p>\n","protected":false},"author":2,"featured_media":197694,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_et_pb_use_builder":"off","_et_pb_old_content":"\"AnFTWW Statement on Senedd Health & Social Care Committee Inquiry into Gynaecological Cancers & Plenary debate (15\/05\/24)<\/span>\n\nBreaking the Silence on Gynaecological Cancers - and Beyond!<\/strong>\n\nHaving contributed extensively to the recent inquiry into gynaecological cancers undertaken by the Senedd Health & Social Care Committee, FTWW was keen to read the Welsh Government's response to the Committee's subsequent report, 'Unheard: Women's Journey Through Gynaecological Cancer'<\/strong><\/a>.\n\nWhilst the vast majority\u00a0of its recommendations were accepted by the Cabinet Secretary for Health and Social Care, Eluned Morgan, some were not - and, so, the debate in yesterday's plenary session in the Senedd was vital to explain those decisions,\u00a0not least because, as Russell George, Chair of the Committee put it, 'the evidence was the most powerful and emotional I've come across'.\n\nPerhaps most in need of clarification was the Welsh Government's assertion that, 'the vast majority of those receiving cancer care for gynaecological cancer consistently report high levels of patient satisfaction with NHS services<\/strong><\/a>', whilst, in contrast, those providing personal testimony to the inquiry stated that they had never been asked about their satisfaction levels. Indeed, the harrowing evidence shared throughout the course of the inquiry conveyed more than mere dissatisfaction. Really hearing<\/em> what patients have to say is an essential first step in creating health services that work for patients, so the routine collection, analysis, and learning which derives from PREMs and PROMs (Patient Recorded Experience and Outcome Measures) must be prioritised by the Welsh NHS going forward, something for which FTWW continues to make the case.\n\nWe also knew that the Women's Health Plan for which we - and the Women's Health Wales Coalition we chair<\/strong><\/a> - have been calling since 2021 would be cited as a key driver of improvements to the experiences recounted by those affected by gynaecological cancers, and we were not disappointed. The Plan - not yet published, but with work on it due to start imminently - was mentioned by every Senedd Member participating in the debate. Finally - and not before time - it looks as though women's health has made it onto the agenda as an issue which transcends party politics, something that touches all citizens in Wales and every single human being the world over.\n\nWhilst the Cabinet Secretary maintains that gynaecological cancers won't necessarily explicitly feature in the Women's Health Plan to which she has committed the NHS (this because there is a separate clinical network and improvement plan for cancer), we would argue that there is inevitable cross-over, so the Women's Health Plan needs to make clear its links to the work underway on cancer, including steps to address workforce and capacity issues within gynaecology settings. Not only this, however - there are aspects unique to female experiences of healthcare which must be acknowledged and challenged head-on if we are to improve the offer to patients, whether they have symptoms of a gynaecological cancer or another health condition.\n\nPerhaps the most significant of these gave rise to the Committee report's title - 'Unheard' - and led to FTWW's creation over ten years ago: the fact that women almost universally describe their reporting of symptoms as being diminished, dismissed, misattributed to emotional or psychological factors, their voices simply drowned out by the overwhelming noise of societal attitudes built upon millennia of gender prejudice, where women's 'wandering wombs' were inextricably connected to their weak and unreliable minds, a state of being historically termed 'hysteria'. It's a concept that continues to cast a long and enduring shadow over our healthcare experiences and it has to be eliminated if we are ever to see things change for the better.\n\nInvolving people with lived experience in the design, delivery, and assessment of medical education has to be one of the most effective ways of ensuring that patient voices are taken seriously and properly embedded in the training our healthcare professionals receive and the services they provide - and this is something FTWW will continue to press home. We also need to see menstrual wellbeing education delivered consistently and well in schools, so that periods and associated symptoms stop being either too taboo to mention, or normalised to the extent that girls are made to think they're making a fuss about nothing,\u00a0a perception which can blight their educational prospects, careers, lives, and wellbeing far into the future.\n\nThings are gradually moving in the right direction, with Welsh Government-funded research projects like SPPINN (Severe Period Pain Is Not Normal)<\/strong><\/a> looking to examine the challenges and gaps in managing this too-often misunderstood and under-estimated issue,\u00a0and a national clinical network for gynaecology developing pan-Wales pathways for patients in secondary care. However, whilst these things are vital, and we anticipate them featuring in Welsh Government work on period dignity, women's health policy, and the NHS Women's Health Plan, loved ones are being lost to gynaecological cancers every day - and, alarmingly, the mortality rate is higher in Wales than anywhere else in the UK.\n\nIt doesn't take a Women's\u00a0Health Plan to know that, now, more than ever, things must change. Let's start by recognising that gynaecological cancers aren't 'silent killers' - women have been asking, begging, shouting to be heard for far too long. Now is the time to start listening.[:cy]\"Darlun\n\nDatganiad FTWW ar Ymchwiliad Pwyllgor Iechyd a Gofal Cymdeithasol y Senedd i Ganser Gynaecolegol a dadl yn y Cyfarfod Llawn (15\/05\/24)\n\nRhoi Sylw i Ganserau Gynaecolegol - a mwy!<\/strong>\n

Ar \u00f4l cyfrannu'n helaeth at yr ymchwiliad diweddar i ganserau gynaecolegol a gynhaliwyd gan Bwyllgor Iechyd a Gofal Cymdeithasol y Senedd, roedd FTWW yn awyddus i ddarllen ymateb Llywodraeth Cymru i adroddiad dilynol y Pwyllgor, 'Heb lais: Taith Menywod Trwy Ganser Gynaecolegol<\/strong><\/a>'<\/p>\nEr bod mwyafrif helaeth ei argymhellion wedi'u derbyn gan Ysgrifennydd y Cabinet dros Iechyd a Gofal Cymdeithasol, Eluned Morgan, gwrthodwyd rhai - ac, felly, roedd y ddadl yn y sesiwn lawn ddoe yn y Senedd yn hanfodol i esbonio'r penderfyniadau hynny, yn anad dim, oherwydd, fel y dywedodd Russell George, Cadeirydd y Pwyllgor, 'y dystiolaeth oedd y mwyaf pwerus ac emosiynol yr wyf wedi dod ar ei thraws'.\n\nEfallai mai'r hyn oedd angen ei egluro fwyaf oedd honiad Llywodraeth Cymru fod, 'mwyafrif helaeth y rhai sy'n derbyn gofal canser ar gyfer canser gynaecolegol yn adrodd yn gyson am lefelau uchel o fodlonrwydd cleifion \u00e2 gwasanaethau'r GIG<\/strong><\/a>', er bod y rhai a roddodd dystiolaeth bersonol i'r ymchwiliad yn dweud i\u2019r gwrthwyneb - nad oeddent erioed wedi cael eu holi am eu lefelau bodlonrwydd. Yn wir, roedd y dystiolaeth ddirdynnol a rannwyd yn ystod yr ymchwiliad yn cyfleu cryn anfodlonrwydd. Mae clywed yr hyn sydd gan gleifion i'w ddweud yn gam cyntaf hanfodol wrth greu gwasanaethau iechyd sy'n gweithio i gleifion, felly mae'n rhaid i'r casgliad, y dadansoddiad a'r dysgu arferol sy'n deillio o PREMs a PROMs (Mesur Profiadau a Gofnodwyd gan Gleifion a Mesurau Canlyniadau) gael eu blaenoriaethu gan GIG Cymru wrth symud ymlaen, rhywbeth y mae FTWW yn parhau i ddadlau\u2019n gryf drosto.\n\nRoeddem hefyd yn gwybod y byddai'r Cynllun Iechyd Menywod yr ydym ni - a Chlymblaid Iechyd Menywod Cymru sy\u2019n cael ei gadeirio gennym<\/strong><\/a> - wedi bod yn galw amdano ers 2021, yn cael ei ddyfynnu fel dogfen allweddol sy\u2019n sbarduno gwelliannau i'r profiadau a adroddwyd gan y rhai yr effeithiwyd arnynt gan ganserau gynaecolegol, ac ni chawsom ein siomi. Cafodd y Cynllun - nad yw wedi\u2019i gyhoeddi eto, er bod gwaith yn dechrau'n arno\u2019n fuan - ei grybwyll gan bob Aelod o'r Senedd a gymerodd ran yn y ddadl. Yn olaf - ac nid cyn pryd - mae'n edrych fel petai iechyd menywod wedi cyrraedd yr agenda fel mater sy'n mynd y tu hwnt i wleidyddiaeth plaid, rhywbeth sy'n cyffwrdd \u00e2 phob dinesydd yng Nghymru a phob unigolyn ar draws y byd.\n\nEr bod Ysgrifennydd y Cabinet yn honni na fydd canserau gynaecolegol o reidrwydd yn cael eu cynnwys yn benodol yng Nghynllun Iechyd Menywod, y mae hi wedi ymrwymo'r GIG iddo (mae hyn oherwydd bod rhwydwaith clinigol a chynllun gwella ar wah\u00e2n ar gyfer canser), byddem yn dadlau bod yna gysylltiad anochel, felly mae angen i'r Cynllun Iechyd Menywod egluro ei gysylltiadau \u00e2'r gwaith sydd ar y gweill ar ganser, gan gynnwys camau i fynd i'r afael \u00e2 materion yn ymwneud \u00e2\u2019r gweithlu a chapasiti mewn lleoliadau gynaecoleg. Nid yn unig hyn, fodd bynnag, - mae agweddau sy'n unigryw i brofiadau menywod o ofal iechyd y mae'n rhaid eu cydnabod a'u herio yn uniongyrchol os ydym am wella'r gwasanaethu a gynigir i gleifion, p'un a oes ganddynt symptomau canser gynaecolegol neu gyflwr iechyd arall.\n\nEfallai mai\u2019r mwyaf arwyddocaol o'r rhain sydd wedi arwain at deitl adroddiad y Pwyllgor - 'Heb lais' - ac a arweiniodd at greu FTWW dros ddeng mlynedd yn \u00f4l: y ffaith bod menywod bron i gyd yn dweud bod y symptomau a adroddir ganddynt yn cael eu hanwybyddu, eu diystyru a\u2019u cam-briodoli i ffactorau emosiynol neu seicolegol, bod eu lleisiau ddim yn cael eu clywed oherwydd y sylw sylweddol i agweddau cymdeithasol sy\u2019n deillio o fil o flynyddoedd o ragfarn ar sail rhyw, lle\u2019r oedd cysylltiad annatod rhwng y 'groth' (wandering womb) \u00e2 meddyliau gwan ac annibynadwy merched, cyflwr yr arferid cyfeirio ato yn y gorffennol fel 'hysteria'. Mae'n gysyniad sy'n parhau i daflu cysgod hir a pharhaus dros ein profiadau gofal iechyd ac mae'n rhaid ei ddileu os ydym am weld pethau'n newid er gwell.\n\nMae cynnwys pobl sydd \u00e2 phrofiad personol o gynllunio, cyflwyno ac asesu addysg feddygol yn un o'r ffyrdd mwyaf effeithiol o sicrhau bod lleisiau cleifion yn cael eu cymryd o ddifrif a\u2019u gwreiddio'n briodol yn yr hyfforddiant y mae ein gweithwyr gofal iechyd proffesiynol yn ei dderbyn a'r gwasanaethau y maent yn eu darparu - ac mae hyn yn rhywbeth y bydd FTWW yn parhau i ymgyrchu drosto. Mae angen i ni hefyd weld addysg lles mislifol yn cael ei chyflwyno'n gyson ac yn dda mewn ysgolion, fel nad yw\u2019r mislif a symptomau cysylltiedig yn ormod o dab\u0175 i\u2019w crybwyll, neu wedi\u2019u normaleiddio i'r graddau y caiff merched eu gwneud i feddwl eu bod yn gwneud ffwdan am ddim byd, canfyddiad a all amharu ar eu rhagolygon addysgol, eu gyrfaoedd, eu bywydau a\u2019u lles ymhell i'r dyfodol.\n\nYn raddol, mae pethau'n symud i'r cyfeiriad cywir, gyda phrosiectau ymchwil a ariennir gan Lywodraeth Cymru fel SPPINN (Dydi Poen Mislif Difrifol Ddim yn Normal)<\/strong><\/a> yn archwilio'r heriau a'r bylchau wrth reoli'r mater hwn sy\u2019n rhy aml yn cael ei gamddeall a\u2019i ddiystyru, a rhwydwaith clinigol cenedlaethol ar gyfer gynaecoleg sy'n datblygu llwybrau Cymru gyfan ar gyfer cleifion mewn gofal eilaidd. Fodd bynnag, er bod y pethau hyn yn hanfodol, ac rydym yn rhagweld y byddant yn ymddangos yng ngwaith Llywodraeth Cymru ar urddas mislif, polisi iechyd menywod, a Chynllun Iechyd Menywod y GIG, mae anwyliaid yn cael eu colli yn sgil canser gynaecolegol bob dydd - a\u2019r hyn sy\u2019n frawychus yw bod cyfradd marwolaethau yn uwch yng Nghymru nag unrhyw le arall yn y DU.\n\nNid oes angen Cynllun Iechyd Menywod i wybod bod yn rhaid i bethau newid, nawr yn fwy nag erioed. Gadewch i ni ddechrau drwy gydnabod nad yw canserau gynaecolegol yn 'laddwyr tawel' - mae menywod wedi bod yn gofyn, yn erfyn, yn gweiddi i gael eu clywed am lawer rhy hir. 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