Our team

FTWW would not exist without a dedicated team of staff, trustees, volunteers and supporters.

Meet the team below…

Our staff

Debbie Shaffer, Director of Policy and Research

Debbie is the founder of FTWW / Fair Treatment for the Women of Wales, set up in 2013 as a result of her own lengthy diagnostic delays and struggles to access specialist treatment in Wales. Sensing that this would be a widespread issue, not least because of gender stereotypes which see ‘women’s health issues’ dismissed and under-served, Debbie created the FTWW community and now registered charity, where those affected could share their experiences and come together to advocate for change.

As a disabled woman and health-service user, Debbie regularly represents patients on Welsh Government groups and wider UK clinical bodies, and is pleased to call herself a ‘critical friend’ to policy-makers.

Dee Montague-Coast, Engagement Officer

In 2020, Dee (she/they) left her career in Marketing and PR to follow her dream of studying an MA in Creative Writing. She then joined FTWW as Engagement Officer in 2021, having previously volunteered for the charity and benefitted from its peer support during her long battle to be diagnosed with endometriosis. She is a matchmaker, working with volunteers, stakeholders and partner organisations to ensure patient voices are heard. Dee also leads on our PR and social media activity.

Dee continues to volunteer; she is a patient representative for myalgic encephalomyelitis (ME) and fibromyalgia with the #WomensHealthWales Coalition, is a member of the Royal College Of GPs (RCGP) Cymru’s Patient Forum, and is the Devolved Nation Rep – Wales on the UK-wide RCGP’s Patient and Carers Partnership Group. Dee is also a mentor on the Equal Power Equal Voice scheme.

Dee is a queer and disabled feminist who is passionate about inclusivity and equity. She was recently awarded a distinction in her MA, and writes about disability and ableism, bereavement, loss and grief. Despite her lived experience of all of that, Dee is a happy and positive cheerleader who aims to change the world (or at least our corner of it) and believes that her dream job with FTWW offers her the perfect opportunity to do so.

Isabel Linton, Charity Coordinator

Isabel (she/her) is based in Gwynedd, and joins us from an education background, having worked at universities in both administrative and teaching roles. She has most recently worked in a research administration role supporting academics and PhD researchers. She has also volunteered with the charity Mencap on the Our Social Networks project.

Isabel is passionate about the work that FTWW does, due to not just her own health experiences, but those of her loved ones. She is eager to contribute to work which directly supports and works with patients.

Our board of trustees

Willow Holloway, Chair

Previously a key worker for adults with autism and learning difficulties, Willow has vast experience in supporting disabled children and adults. Willow has delivered consultation events, workshops and training for North Wales Police, and has an extensive knowledge of autism from both a professional and personal perspective. Willow’s roles include Founder of The Autistic Women’s Empowerment Project , Vice Chair –Disability Wales, and Welsh Representative and Chair of Autistic UK.

Liz Williams, Joint Vice Chair

Liz currently works at RNIB Cymru, leading on campaigns that aim to reduce the everyday barriers faced by people with sight loss. This includes lobbying policy and decision makers around the importance of accessible health information, as well as the importance of ensuring blind and partially sighted people are not disproportionately impacted by the cost of living crisis.

“I’m incredibly passionate about tackling health inequalities and I’m delighted to join FTWW as a trustee as I admire its dedication to co-production, meaningful engagement and ensuring the stories of people with lived experience are central to its policy positions.”

Karen Hiu Ching Lo, Joint Vice Chair

Karen has been a volunteer for FTWW for a number of years. She moved to Cardiff to study medicine yet found herself struggling with her own health at the same time.

Having faced barriers both as a patient and a medical student, she is determined to be the doctor that she would personally want to see – empathetic, caring and respecting her patients as people – an equal.  

Karen’s aim is to improve NHS Wales on a systemic-level through coproduction, ensuring patients’ concerns are communicated effectively and relaying considerations from clinicians to promote shared-decision making and understanding between all parties.  

June Jeremy, Treasurer

June has a Finance Admin background primarily working in Payroll/Pension environment, and before retiring she worked for an Education charity Addysg Oedolion Cymru (formerly Workers Education Association) for nearly 20 years, also serving firstly as a Staff Observer then Staff Governor over an eight year period. 

On a personal level, June experienced the difficulties of being diagnosed with endometriosis (over 15 years) and other health issues, and is looking forward to contributing her personal / work experience to help FTWW move forward in helping the women of Wales achieve equality and more for their health issues. 

Alison Pritchard, Trustee

Alison has been working in and around the third sector since graduating in 2009, having previously volunteered for a number of organisations and lead Swansea University’s Raise and Give society in her final year. She has spent the last four years at WCVA, recently becoming Head of Support. Her main experience is in funding and fundraising – skills and knowledge of which she hopes to bring to FTWW to help build the organisation’s longer-term sustainability.

Alison was drawn to FTWW after reading Invisible Women, which crystalised the issue of just how little women’s health is understood (globally) and how impactful this inequality is on both our day to day lives and wider society.  

Dee Dickens, Trustee

Dee Dickens (pronouns she/they) comes from a trades union background with special skills in activism, negotiation and generally rallying the troops.

She is also a woman. One that has had a slew of health conditions since they first started puberty. Dee is Autistic with ADHD and is determined to make things better for the women and registered female at birth (AFAB) people of Wales and to do it via co-production. Nothing About Us Without Us are words they live by along with Be You, The World Will Adjust.

A PhD student and slam poet, Dee is very much looking forward to getting stuck into her new role. 

Jon Stevens, Trustee

John has worked in a range of roles within the public and third sector over the course of his career.  In recent years he has worked extensively in the Advocacy sector, supporting individuals with diverse needs and issues, in a range of health and social care settings.  Having stepped into management, Jon has been responsible for the development and delivery of a number of Advocacy projects across North Wales, and maintains an active caseload providing direct advocacy support.  Jon is currently the CEO of North Wales Advice and Advocacy Association.   

Kirsty Pringle, Trustee

Kirsty has worked in a variety of roles in her 20 year career in Local Government supporting children, young adults and families, and she is currently enjoying maternity leave with her baby twins following successful IVF treatment. Kirsty is Youth Homelessness Coordinator for Powys and project manages a Welsh Government funded Housing First for Youth project for vulnerable young people with complex needs.

She has a holistic health and wellness partnership and also works alongside a Positive Psychologist in delivering wellbeing programmes to organisations, schools and universities. Kirsty first became aware of FTWW when she was searching for answers to her own ill-health and believing it may be due to Endometriosis and Hypermobility Spectrum Disorder. With the support and guidance from the group she overcame battles with a challenging healthcare system to receive both diagnoses. She has also recently received a diagnosis for ADHD and is keen to support improvements in the recognition and support for people with neurodivergent conditions. She became a volunteer with FTWW, believing passionately in their work and mission.

Kirsty is delighted to become a member of the Board to help FTWW’s in furthering the realisation of health equity in Wales.

Lucy Cone, Trustee

Lucy is an experienced strategic communications and marketing consultant who has worked across voluntary and private sectors in Wales and beyond.

“FTWW’s mission is something that is close to my heart. Like many of FTWW’s supporters, I have encountered numerous barriers when trying to access the healthcare I needed and I want to help ensure that others do not have the same experience. Joining the board at FTWW gives me the opportunity to contribute my time and expertise to support much needed change, in an area that I am passionate about.”

Louise Evans, Patient Advisor

Louise has a background in Business and Finance, and has travelled the world whilst working in the Hospitality industry. Since then, she has returned to her native North Wales, and, as a consequence of her own personal battles with chronic conditions, is a passionate advocate for women’s health.

Louise has been involved with FTWW from when it was first founded, having previously been a Trustee for several years. As a volunteer she has been responsible for running the charity’s online presence, helping organise events, and many other varied tasks over the years! Louise is keen to use both her positive and negative experiences as a patient to make a difference to others, and to empower women to advocate for themselves – in order to get the best care possible. 

Our Volunteer Champions

Tami Rolls, Volunteer Finance Officer

Tami has worked for over 25 years as a senior finance professional, both in the UK and USA. Most of Tami’s career has been within the public health sector, inlcuding her role as Interim Finance Director of Public Health Wales (PHW). Tami has been a member of the World Health Organisation (WHO) Collaborating Centre on Investment for Health and Well-being, and has recently completed a Masters in Public Health. Now at the University of South Wales, Tami manages health education contracts and police apprenticeships.

I am passionate about women’s equality and empowerment, not least because I have two adult daughters.”

More information on our volunteer champions coming soon…

Clinical Advisory Group

FTWW is delighted to be establishing a Clinical Advisory Group which will provide clinical insights to the Board of Trustees and FTWW staff.

The group is made up of healthcare professionals in a number of different specialties across Wales and Chaired by FTWW’s Vice Chair, Dr. Karen Hiu Ching Lo.

Beyond their professional roles, all share the same passion and dedication to improve the health experiences and outcomes of patients in Wales. Many of them have worked with FTWW over several years, supporting our mission to eliminate health inequities experienced by women and people registered female at birth.

Membership of the Clinical Advisory Group will reflect the priorities of FTWW’s pan-Wales patient community, with links to professionals in other specialties being established as new themes emerge and evolve over time.

The Group will meet once a quarter and review any clinical information being shared publicly, in line with their individual areas of expertise. Members will also provide insights to the Board and staff about any healthcare-related issues and potential research topics of which the organisation should be aware.

As well as ensuring good clinical governance for the charity, a key focus for the Clinical Advisory Group will be to ensure that FTWW is able to continually highlight where health service provision can be improved, so that we can effectively advocate for patient equity across Wales.

Please note that FTWW’s Clinical Advisory Group does not provide clinical advice for individuals, or any personal circumstances.

Dr Karen Hiu Ching Lo

Karen is Chair of FTWW’s Clinical Advisory Group (CAG) and a resident doctor on a clinical leadership and management specialised foundation programme. She is passionate about creating space for meaningful collaboration between patients and healthcare professionals, and sees the CAG as an exciting opportunity to embed co-production, shared decision-making, and patient voice at the heart of healthcare in Wales.

Karen is committed to ensuring the group supports FTWW’s mission by promoting equity, compassion, and systemic improvement across services for women and people registered female at birth.

Angharad Jones

Miss Angharad Jones

Angharad is a consultant gynaecologist at the University Hospital of Wales, Cardiff, with special interests in advanced minimally invasive gynaecological surgery, endometriosis care and outpatient operating. She is a senior British Society for Gynaecological Endoscopy (BSGE) Council member, acting as portfolio lead for information resources, and is the editor of the Scope magazine. She is an active member of the Royal College of Obstetricians & Gynaecologists (RCOG), having served as council member for Wales.

Angharad has worked collaboratively with FTWW on projects such as the Endometriosis Cymru website, and looks forward to supporting the charity’s Clinical Advisory Group going forward.

Gail Pettifor-Jones

Gail Pettifor-Jones

Gail’s professional nursing career has always been in Womens Health, in particular Gynaecology, of which she has extensive working knowledge, particularly endometriosis, menopause, and uro-gynaecology.

Gail is current Chair of the Women’s Services North Wales Gynae Forum, the Women’s Services Women’s Health Improvement Group (WHIG) and Co-chair of the BCU Gynae Voices Forum. As Chair of the latter, she works closely with service users, including members of FTWW. She has experience of  co-producing  a number of service developments in North Wales and says she is ‘honoured to be asked to sit on FTWW’s Clinical Advisory Group’.

Katharine Gale

Katharine Gale

Katharine is a mid-Wales based Consultant Nurse in Women’s Health and the former Chair of the Royal College of Nursing Women’s Health Forum. She is Co-Chair of the Menstrual Health Coalition and an enthusiastic registered nurse, hysteroscopist, sonographer and prescriber. Katharine has used her clinical expertise and advanced practice skills in women’s health to enhance care and professional practice, including operational and strategic engagement in both clinical and political issues that affect service provision, healthcare, and the well-being of girls and women across the UK.

Katharine is a certified coach, trainer, and professional speaker on menopause and women’s health issues and the Founder and Director of FluxState Ltd. As a member of FTWW’s Clinical Advisory Group, Katharine is ‘proud to align my clinical and advocacy work with our joint mission to amplify the voices of women and those registered female at birth, ensuring their lived experiences shape policy, service design, and delivery across Wales’.

Geeta Kumar

Mrs Geeta Kumar

Geeta is a Consultant Obstetrician and Gynaecologist, and Lead for Women’s Services at Betsi Cadwaladr University Health Board. She is also Vice President for Clinical Quality at the Royal College of Obstetricians and Gynaecologists and a Visiting Professor at Wrexham University. Geeta’s clinical interests include menstrual disorders and menopause. As a committed advocate for women’s voices, Geeta supports FTWW in championing equitable care and patient-led change in healthcare.

Dawn Owen

Dr Dawn Owen

Dawn has been a volunteer member of FTWW since 2020, following a health-related trauma that unexpectedly placed her into surgical menopause. She describes the peer support, camaraderie, information, volunteering, research and learning opportunities from FTWW as having gone a long way to helping her re-write a narrative she thought had been lost post-surgery.

Professionally, Dawn has been a qualified Clinical Psychologist since 2003, supporting adults with a learning disability and Autism within an inpatient service in North Wales. She has devoted her career to supporting and advocating for service users who are marginalised or unheard. She looks forward to contributing further to the work of FTWW through the Clinical Advisory Group.

Dr Charlotte Jones

Dr Charlotte Jones

Charlotte is a General Practitioner in South Wales with extensive experience in patient care and medical education. She collaborates on the development of impactful medical education programs and advocacy strategies.

With senior leadership experience in clinical practice and medical politics, a 20 year history of educational appraisals and development of patient-centred pathways for clinicians to use, Charlotte has a deep understanding of healthcare professional and patient needs, coupled with real time experience of the challenges faced in healthcare provision. She is pleased to be supporting the work of FTWW, as part of its clinical advisory group.

Janine Dailey

Janine Dailey

Since moving to West Wales in 2006, Janine has been a leading figure in continence care within Hywel Dda University Health Board. With a background as a Continence Clinical Nurse Specialist, she played a key role in transforming service delivery – most notably by establishing the Health Board’s first centralised continence prescribing service, and is now the Lead Nurse for Bladder, Bowel, and Pelvic Health.

Janine is deeply committed to improving the lives of individuals experiencing bladder and bowel health issues, often helping to break down stigma and promote open, person-centred care. Her work empowers people to manage their symptoms with dignity and confidence.

She actively contributes to conferences, and national and local forums, including the All-Wales Continence Forum and now the Clinical Advisory Board for FTWW. A passionate champion of transformational change, Janine continues to drive innovation in care models that place the individual at the heart of every decision.

Mr Caleb Igbenehi

Biography coming soon!

Become a volunteer

FTWW started out as a volunteer-led community and our volunteers remain at the heart of what we do now.

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