As part of BBC Radio Wales’ coverage of the petition to UK Parliament calling for statutory menstrual leave for people with endometriosis and adenomyosis, FTWW Engagement Coordinator, Dee, spoke to BBC Radio Wales about the importance of ensuring that disabled and chronically ill women and people registered female at birth – and their employers – are aware of existing legislation that can protect their employment rights and help them thrive in the workplace.
Following the very exciting initial findings from the Decode ME study, which found that people with a Myalgic Encephalomyelitis (ME/CFS) diagnosis have significant genetic differences in their DNA compared to the general population, we were delighted to hear BBC Radio Wales cover the study – and people’s lived experiences – in detail during an episode of The Phone in with Oliver Hides.
July is Disability Pride Month, and here at FTWW we truly believe that disability something to be ‘proud’ of – if you haven’t read our previous blog on this, we’d recommend doing so before you read this one!
As a member disabled people’s organisation (DPO) of Disability Wales, FTWW supports their statement published today in response to the Welfare Bill concessions (see below).
The consultation on Welsh Government’s upcoming Draft Disabled People’s Rights plan is now open. The plan, based on the work of the Disability Rights Taskforce (of which FTWW is a member organisation), sets out a 10-year ambition and the long-term outcomes the Welsh Government is working towards to ensure disabled people can flourish as equal members of Welsh society, and to challenge discrimination and prejudice.
We are conducting a project to develop a measure of the costs related to having menopausal symptoms for use in the ESTEEM trial which is looking at the use of testosterone when added to hormone replacement therapy (HRT).
Addressing diagnostic delays for endometriosis and improving awareness amongst healthcare professionals remains a core objective for us, so we were delighted to coproduce the training offered to GPs – as reported here by ITV Cymru Wales.
Thanks to the efforts and lived expertise of FTWW’s PMDD Champions, Becci and Laura, NHS Wales now offers updated and bilingual information about premenstrual dysphoric disorder and exacerbation on its 111 A-Z pages!
With the Senedd elections taking place in under a year, we chose this very special day, International Day of Action for Women’s Health, to launch our Manifesto for the 2026-2030 Senedd term.
FTWW and Volunteer Autoimmune Champion, Dalila, is cited in this groundbreaking report which sought to bring together the experiences of both patients living with lupus and the clinicians supporting them.
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