July is Disability Pride Month, and here at FTWW we truly believe that disability something to be ‘proud’ of – if you haven’t read our previous blog on this, we’d recommend doing so before you read this one!
Health issues
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Welfare Bill Concessions – FTWW Statement
As a member disabled people’s organisation (DPO) of Disability Wales, FTWW supports their statement published today in response to the Welfare Bill concessions (see below).
Draft Disabled People’s Rights Plan – Consultation Open
The consultation on Welsh Government’s upcoming Draft Disabled People’s Rights plan is now open. The plan, based on the work of the Disability Rights Taskforce (of which FTWW is a member organisation), sets out a 10-year ambition and the long-term outcomes the Welsh Government is working towards to ensure disabled people can flourish as equal members of Welsh society, and to challenge discrimination and prejudice.
Are you taking HRT and still experiencing menopause symptoms?
We are conducting a project to develop a measure of the costs related to having menopausal symptoms for use in the ESTEEM trial which is looking at the use of testosterone when added to hormone replacement therapy (HRT).
GPs to be trained to recognise symptoms of endometriosis earlier
Addressing diagnostic delays for endometriosis and improving awareness amongst healthcare professionals remains a core objective for us, so we were delighted to coproduce the training offered to GPs – as reported here by ITV Cymru Wales.
FTWW’s Champions Coproduce PMDD Information for NHS Wales
Thanks to the efforts and lived expertise of FTWW’s PMDD Champions, Becci and Laura, NHS Wales now offers updated and bilingual information about premenstrual dysphoric disorder and exacerbation on its 111 A-Z pages!
Read our Manifesto: Our Right to Health and Wellbeing in Wales
With the Senedd elections taking place in under a year, we chose this very special day, International Day of Action for Women’s Health, to launch our Manifesto for the 2026-2030 Senedd term.
CEDAR publishes NHS Wales Lupus Service Evaluation
FTWW and Volunteer Autoimmune Champion, Dalila, is cited in this groundbreaking report which sought to bring together the experiences of both patients living with lupus and the clinicians supporting them.
ME Voices Wales – save the date!
The first online event to explore ways that people affected by ME in can have a louder voice in Wales is scheduled for Tuesday 13 May at 11 am. If you can’t make that, there will be another chance to join in on Friday 16 May at 6pm.
ME Voices Wales – have your say!
ME Voices Wales is an exciting new project to bring people together so we can listen to each other and work out ways we can communicate about things that are important to us.
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