As followers of FTWW will likely know, FTWW is the third sector Patient and Public Involvement and Engagement (PPIE) co-lead in WHRW. We are therefore delighted to share this fantastic opportunity to join the Centre’s PPIE Advisory Group, perfect for those with a keen interest in women’s health.
FTWW’s PCOS/PMOS Volunteer Champion talks about the name change in a new blog post! I’m Shannon. I’m in my early 50s and I live in North Wales with my Welsh husband. We care for his Mum, so live with her, and we have two lovely Yorkies. Let me take you back now to when I was a teenager…
Affecting millions of women and people registered female at birth, the long overdue change of name from PCOS (Polycystic Ovary Syndrome) to PMOS (Polyendocrine Metabolic Ovarian Syndrome) is designed to improve diagnosis and care – and, importantly, address the myth that it’s ‘all about ovarian cysts’.
I’m Lowri and I’ve volunteered for FTWW for about 10 years (I think?!) I am also the endometriosis workplace champion for Powys County Council, and Mid Wales Endometriosis Support Group Leader – I wear a lot of hats! I was recently invited by Debbie to attend the launch of the All-Party Parliamentary Group (APPG) Inquiry into Endometriosis and the Workplace at Parliament in London, representing FTWW.
In partnership with Endometriosis UK, and supported by Cysters, International Association of Premenstrual Disorders (IAPMD) UK, Menstrual Health Coalition, Royal College of Obstetricians and Gynaecologists, Swansea and Bridgend Endometriosis Support, The South Wales Menopause Community, and the University of the West of Scotland, FTWW was pleased to host a lively online hustings on ‘Making Menstrual Health Matter in Wales’ ahead of the Senedd elections next month.
In memory of their colleague and friend, Sarah Seddon, who passed away unexpectedly in December last year, Ffion, Jordan, Suri, Charity and Ama took on the SheUltra Women’s only Ultra marathon on the 11th April 2026 to raise money for FTWW.
After five incredible years of working with FTWW, we’re sad to be bidding farewell to our Engagement Coordinator, Dee.
The Senedd Elections are taking place on 7 May, and candidates are busy canvassing for your support.
Whether you’re locked in on who to vote for or still undecided, we need your help!
With International Women’s Day, Autoimmune Awareness Month, and Endometriosis Action Month all taking place in March, you may well have encountered FTWW staff and volunteers at a wide array of events this month, where we’ve been raising awareness of all things female health.
Cardiff University is launching a new research project on 1 April 2026, funded by Health and Care Research Wales, aimed at improving how women and healthcare professionals communicate and make decisions about the duration of Hormone Replacement Therapy (HRT). The CANDOUR Study — Communication ANd Decisionmaking arOund DURation of Hormone Replacement Therapy — will address significant gaps in evidence, practice and resources relating to when and how women continue or discontinue HRT.
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