FTWW’s PCOS/PMOS Volunteer Champion talks about the name change in a new blog post! I’m Shannon. I’m in my early 50s and I live in North Wales with my Welsh husband. We care for his Mum, so live with her, and we have two lovely Yorkies. Let me take you back now to when I was a teenager…
Affecting millions of women and people registered female at birth, the long overdue change of name from PCOS (Polycystic Ovary Syndrome) to PMOS (Polyendocrine Metabolic Ovarian Syndrome) is designed to improve diagnosis and care – and, importantly, address the myth that it’s ‘all about ovarian cysts’.
I’m Lowri and I’ve volunteered for FTWW for about 10 years (I think?!) I am also the endometriosis workplace champion for Powys County Council, and Mid Wales Endometriosis Support Group Leader – I wear a lot of hats! I was recently invited by Debbie to attend the launch of the All-Party Parliamentary Group (APPG) Inquiry into Endometriosis and the Workplace at Parliament in London, representing FTWW.
In partnership with Endometriosis UK, and supported by Cysters, International Association of Premenstrual Disorders (IAPMD) UK, Menstrual Health Coalition, Royal College of Obstetricians and Gynaecologists, Swansea and Bridgend Endometriosis Support, The South Wales Menopause Community, and the University of the West of Scotland, FTWW was pleased to host a lively online hustings on ‘Making Menstrual Health Matter in Wales’ ahead of the Senedd elections next month.
With International Women’s Day, Autoimmune Awareness Month, and Endometriosis Action Month all taking place in March, you may well have encountered FTWW staff and volunteers at a wide array of events this month, where we’ve been raising awareness of all things female health.
Cardiff University is launching a new research project on 1 April 2026, funded by Health and Care Research Wales, aimed at improving how women and healthcare professionals communicate and make decisions about the duration of Hormone Replacement Therapy (HRT). The CANDOUR Study — Communication ANd Decisionmaking arOund DURation of Hormone Replacement Therapy — will address significant gaps in evidence, practice and resources relating to when and how women continue or discontinue HRT.
Blog by FTWW Volunteer, Eliza
FTWW’s webinar series for members continues, with February’s being a much-anticipated introductory session on how to be assertive. Coming up in March, we’ll be joined by Cambridge University researcher, Kate Sheridan, to explore the ‘good, the bad, and the ugly’ of Femtech.
We have been delivering more training on Period Dignity, covering the topics of menstrual health and wellbeing, period poverty, menopause, and the impact on education and employment. We were also delighted to deliver a ‘Lunch and Learn’ session with Welsh Government colleagues across all policy areas to share findings from the recently-concluded ‘SPPINN (Severe Period Pain Is Not Normal) Study.
FTWW Volunteer and Community Coordinator, Louise, was delighted to be joined by our Volunteer Fibroids Champion, Carina, at the Healthy Lives Community Engagement event at Cardiff City Stadium earlier this month, focused on the ‘health, wellbeing, screening, immunisations and support services’ available in local communities.
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